Women's Health, Pediatrics
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Journey Beads: Precious Jewels
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For premature and medically fragile babies, every milestone represents an emotionally packed triumph. The AAMC NICU–Teddy’s Place celebrates these victories with its Journey Bead necklace program. When a baby is first admitted, the mother receives a necklace with one bead—blue for a boy, pink for a girl. A bead is added for each milestone the baby achieves while at the hospital. A few of these significant events include the first diaper change, snuggling into kangaroo care, coming off oxygen, successfully breast-feeding, and the grandest bead of all, going home.
“It’s a way to help parents recognize each accomplishment. But it’s also a way to keep them thinking positive thoughts,” says NICU Nurse Navigator Polly White, RN. “When I bring in a bead for baby’s first breast-feeding or coming off oxygen, it’s easy to open a conversation about what’s next—what we can look forward to. So I think in some ways this necklace that represents success softens negative emotions that can crop up during any parent’s journey.”
They’re inexpensive beads on a black leather string, Polly adds, but mothers wear their necklace as if it holds precious jewels. “It’s physical proof that this tiny person, who may seem so fragile, is actually quite strong and courageous—moving forward in the best possible way.”
Return to “A Tiny Miracle.”
Women's Health, Pediatrics, Uncategorized, Patient Stories
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A tiny miracle: Mom and preemie thrive
Blog
Adalyn Marie Shockley came into this world weighing 1 pound, 6.9 ounces and measuring 12.6 inches long. She took her first breath at 6:14pm on April 27, 2015, following an emergency C-section at Anne Arundel Medical Center. Immediately after delivery, she was transferred to AAMC’s Level III Neonatal Intensive Care Unit–Teddy’s Place.
Photographer Leah Adkins captured specialmoments from the Shockleys’ early days in the NICU and wrote about her experience taking the photos on her blog.
Addy, as her parents Meisha and Adrian Shockley call their itty-bitty miracle, was born at 27 weeks gestation. “Her skin was translucent—too sensitive to even touch,” Meisha recalls.
An Unexpected Journey
Today, Adalyn is home, although she continues to routinely see a series of pediatric specialists on the AAMC campus—including her cardiologist, pulmonologist, endocrinologist, and infants and toddlers therapist—to ensure continued healthy development. “Even though it’s a two-hour drive from my front door in Salisbury to AAMC in Annapolis, I am adamant that Adalyn stay with the same doctors who saved her life,” Meisha says.
In fact, because of the 88-mile distance and Meisha’s history of a healthy, full-term pregnancy with her first daughter, the Shockleys never intended to deliver at AAMC. But as Meisha’s second pregnancy approached its third trimester, she developed a migraine that wouldn’t budge. She was diagnosed with preeclampsia, a dangerous pregnancy complication characterized by high blood pressure, which increases risk of maternal stroke and restricts blood flow to the placenta.
Meisha’s preeclampsia was acute and required immediate 24/7 bed rest in a hospital with a Level III NICU, since the chances for a premature delivery were high and the baby would need skilled neonatal care. “No hospital close to home could provide the care we needed to protect our baby’s life,” Meisha says. “That’s when we decided to take our unexpected journey to AAMC.”
LEARN MORE: Read about the Journey Bead necklace program at the AAMC-NICU-Teddy’s Place.
Care Extraordinaire
Meisha was admitted to AAMC at 25 weeks gestation to control her blood pressure and keep Adalyn inside her body for as long as possible. “The nurses went above and beyond their job description to help calm my fears,” Meisha says, which included celebrating every extra day that Adalyn stayed put.
“I don’t know how I would have made it without the doctors’ and nurses’ constant reassurance,” Meisha says. “But at the same time, they never sugarcoated anything. Every question was answered as if it were the most important question in the world.”
After three weeks at AAMC, it was time to deliver. The day before Meisha’s scheduled C-section, she received a full rundown of what to expect and spent time with the NICU staff. “They explained that my baby would be on a ventilator, and she wouldn’t look like my four-year-old daughter when she was born. Still though, the discussion was so personable and compassionate, I went into surgery feeling confident,” Meisha recalls.
It took one full week before Addy could be held, which Meisha describes as “the longest week of my life.” When Addy was ready to leave her incubator for short periods of time, staff taught Meisha and Adrian kangaroo care, where parents hold their baby against their bare chests. As each day passed—and Addy grew stronger—Meisha and Adrian became more involved in their daughter’s care.
“I feel the most important thing we can do is engage parents as soon as possible and help them feel comfortable taking care of their own child,” explains Suzanne Rindfleisch, DO, medical director of AAMC’s NICU–Teddy’s Place. “I’m very proud of our medical management and outstanding results, but our role is only the beginning of a baby’s story. So many studies tell us that the biggest indicator of a good outcome for a baby is going home to a family that’s prepared to engage with their baby and not treat this person as some fragile being.”
Homeward Bound
Three months after Adalyn’s birth, it was time to head home. The Shockleys left the hospital with more than a thriving baby daughter. They also brought home a positive and confident attitude, instilled in them by the staff. “Every moment at AAMC was filled with another celebration,” Meisha says. “Taking Addy off the ventilator and out of the incubator, getting her dressed, feeding her…those were milestones that we celebrated. Now that we’re home, we’re still celebrating. When we see our daughter making strides—one gram at a time—we’re so excited.”
Learn more about our birth services and classes.
Contributor
Suzanne Rindfleisch, DO, is medical director of AAMC’s NICU-Teddy’s Place.
Cancer Care, Women's Health, Uncategorized, Patient Stories
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Genetic testing empowers breast cancer survivor
Blog
“As far as I know, there is no breast cancer in my family history,” says Annapolis resident Aileen Carlucci. But in the summer of 2008, she was diagnosed with breast cancer at the age of 49 after a routine mammogram.
Aileen’s early-stage cancer was treated successfully with surgery and radiation at The Breast Center at Anne Arundel Medical Center’s Geaton and JoAnn DeCesaris Cancer Institute. She completed her final radiation treatment on November 1st, 2008—the 18th birthday of her daughter, Christina—and has been cancer-free for more than five years, which means she is at low risk for her cancer to return.
“Fast-forward a few years, and you begin to forget,” says Aileen. “One day you wake up, and it’s not the first thing you think about, that, my God, I had breast cancer.”
But earlier this year, her friend Cynthia lost a battle with stage IV breast cancer. Before she passed away, Cynthia talked to Aileen about genetic testing. “She made me promise that I would inquire about genetic testing at my next oncology appointment.”
Uncovering Hidden Risk
In March, Aileen met with Ashley Allenby, a certified genetic counselor at the DeCesaris Cancer Institute. “We met in a comfortable room and sat on the couch,” says Aileen. “Ashley and I went through my family history, and I was surprised to learn that I did have risk factors for breast cancer.”
“People are referred for genetic counseling if they have certain red flags that mean they could have a genetic mutation that predisposes them to developing cancer,” says Ashley. “In Aileen’s case, she had been diagnosed with breast cancer before 50, which is one of the clues that we look for. She also reported Ashkenazi Jewish ancestry on her father’s side.”
About 1 in 500 people have a BRCA1 or BRCA2 gene that is mutated. This frequency is even higher in individuals of Ashkenazi Jewish (Central or Eastern European) ancestry, with 1 in 40 people carrying a mutation. People with a BRCA mutation have a higher risk for breast, ovarian and other cancers.
Experts estimate women with a BRCA1 or BRCA2 mutation have a 45 to 84 percent lifetime risk of developing breast cancer. In the general U.S. population, 12 percent of women develop breast cancer over their lifetimes. Moreover, women with either of these mutations have up to a 44 percent chance of developing ovarian cancer, compared to the general population’s risk of around 1.5 percent.
Questions to ask your blood relatives
• Who has had cancer in our family?
• What types of cancer?
• At what ages were they diagnosed?
• What ethnicity are my parents, grandparents, and great-grandparents?
• Has anybody in our family had genetic testing, and what were the results?
Empowering Information
“Ashley gave me an enormous amount of information,” says Aileen. She learned what the results of a genetic test would mean for her risk for other cancers, as well as the implications for her siblings and her children.
After the counseling session, she had her blood drawn. Four weeks later, Ashley called with the results: Aileen carries a BRCA2 mutation.
“In a way I felt vindicated,” says Aileen. “Now I know why I got breast cancer, and it was nothing that I did. It’s a family heritage. My biggest concern is my children.”
Her daughter and son each have a 50 percent chance of inheriting the BRCA2 mutation from her. This is of special concern for Christina, who is now 24, as experts recommend that women with a BRCA mutation begin enhanced breast cancer screening around age 25. These women may also want to consider preventive surgery or other methods to reduce their cancer risk.
Aileen accompanied Christina to her own genetic counseling and testing session in July. Christina was relieved to find out she does not carry the BRAC2 mutation.
“The goal, if we find a genetic mutation, is to reduce the risk for cancer or aid in early detection,” says Ashley. “I think it’s powerful information to have these genetic test results to be able to be informed and make proactive decisions.”
Four Ways to Help a Friend with Breast Cancer
You may wonder what the right things to do for a friend with breast cancer are. Read more to find out a few tips.
Giving Back
Even before she was diagnosed, Aileen and her husband, Bob, were involved with Bosom Buddies Charities, which raises money to support early detection and treatment of breast cancer in Queen Anne’s County.
On January 9, she will be the honoree at the 2016 Bosom Buddies Ball at the Westin Hotel in Annapolis. Since 2007, the charity has donated more than $900,000 to support breast cancer care and treatment at AAMC.
“When I was diagnosed with breast cancer, I was in such a great place,” says Aileen. “It was because of the hospital and the encouragement they gave me, my friends in Bosom Buddies, and my family. I know how lucky I am. And I think early detection truly saves lives.”
Contributor
Ashley Allenby is a certified genetic counselor at the DeCesaris Cancer Institute. Make an appointment for genetic counseling at 443-481-5864.
Community, News & Press Releases
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AAMC nurse discusses climate change with President Obama
Blog
Anne Arundel Medical Center Sustainability Coordinator Charlotte Wallace, RN, recently participated in a roundtable discussion with President Barack Obama on the public health impacts of climate change.
Charlotte, representing the group Alliance of Nurses for a Healthy Environment, spoke about a subject that has consumed her since her days as a bedside pediatric nurse: childhood asthma. Recent studies show children in Baltimore have an asthma rate that’s twice the national average. Climate change can lead to longer allergy seasons and more smog, further increasing the incidence of asthma.
By sharing her experiences with President Obama, the Surgeon General, the head of the Environmental Protection Agency, and other members of the roundtable, Charlotte hopes more people and businesses will think about how their daily activities affect air quality and the health of children.
Cancer Care, Men's Health, Women's Health
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Diagnostic Imaging: What You Should Know
Blog
Excerpts from our Living Well with Cancer podcast interview with Karen Scott, executive director of Anne Arundel Diagnostics Imaging. Listen to the entire interview here.
Once you’ve had an image taken or a diagnostic test, who reads those images?
All imaging studies are ready by board-certified imaging specialists, which is very important. At Anne Arundel Diagnostics, we also have radiologists that sub-specialize in areas such as women’s imaging, which includes the mammography studies and breast procedures. We have doctors that sub-specialize in muscular-skeletal studies for orthopedic reads. And, neuroreads, which are read by neuroradiologists who specialize in brain imaging.
Should the patient ask for a copy of the results or the image after they leave?
They can ask for that. However, if the facility has an electronic record, you typically don’t need a copy because your provider can view the images online. They can see the results online and then we also have what’s called MyChart for patients. Patients can sign up for MyChart to view their records and can also get their results via an email.
What would those results look like in MyChart?
In MyChart it would be the actual written report that your physician is seeing.
Read the transcript of the interview or listen to the recording.